A
Radical Experiment in Mental Health Care, Tested Over Centuries
In the
Belgian town of Geel, families have long taken in
people with psychiatric conditions. Could this approach work elsewhere?
A painful loop has defined Iosif’s 53 years on earth: trauma, mental breakdown,
psychiatric institutionalization.
From his native Romania to a
failed asylum bid in Belgium and later divorce and financial distress, Iosif’s condition has punctuated crises in his life that
often spiraled out of control.
But as he sat at the dining
table overlooking the woods through wide glass doors, he seemed at peace.
He spoke about his daily
chores (feeding the donkey, doing the dishes), favorite
pastimes (reading the Bible, shopping), worries (forgetting to take his pills,
overspending).
In the living room, the
sounds of cartoons filled the air. Etty, 71, and Luc Hayen, 75, were transfixed watching a children’s show
involving a mouse on an outlandish adventure. The house cat was curled up on a
cream sofa.
All of them live with Ann Peetermans, a 47-year-old beautician, and her teenage son
in a long-term arrangement where people with mental illnesses move in with
local families.
It is an approach to
psychiatric care that has gone on in Geel (pronounced
“hail”) since as early as the 13th century, archives show. The locals began
building a church to St. Dymphna, the patron saint of mental illness, in the
mid-1300s and pilgrims flocked to Geel. They lived in
the local farmers’ homesteads, where they worked the land alongside their new
families.
Both the tradition and the
church still stand.
By the end of the 19th
century, nearly 2,000 boarders lived among the Geelians,
as the locals call themselves. Today the town of 41,000 in Flanders, the
Dutch-speaking part of Belgium, has 120 boarders in local homes.
That has made Geel both something of a model for a particular paradigm of
psychiatric care and an outlier, often regarded over the centuries with
suspicion (including by The New York Times, which, in a headline
from March 23, 1891, called Geel “a colony where
lunatics live with peasants” that had been “productive of misery and evil
results”).
Those suspicions only grew as
Geel’s approach crushed up against the rising medical
field of psychiatry. In more recent times, however, the town has come up for
reconsideration as an emblem of a humane alternative to the neglect or
institutionalization of those with mental illness found in other places.
“There has always been
controversy about how ‘disturbed’ or ‘eccentric’ people should be treated,”
wrote Oliver Sacks, the renowned neurologist, in 2007, in his foreword to the
book “Geel Revisited,” an examination of 19 boarders
over the course of decades.
“Should they be treated as
ill, possibly dangerous, confined in institutions?” wrote Dr.
Sacks, who died in 2015. “Or is there a chance that a more human and social
approach, trying to reintegrate them into family and community life, a life of
love and work, will succeed as well?”
For Dr.
Sacks, who had visited Geel, the answer was to accept
mental illness as individuality, rather than a stigmatizing disability.
Geel
proves, Dr. Sacks concluded, that “even those who
could seem to be incurably afflicted can, potentially, live full, dignified,
loved and secure lives.”
Care as Identity
When Ms. Peetermans
was growing up in Geel her aunt hosted boarders with
psychiatric conditions. This was natural for Geelians,
she said.
Seven years ago, when she
considered joining the centuries-old tradition herself, it wasn’t a question of
if she would take boarders into her newly renovated home, but of how many.
“I think that if I could
have four, I would also be up for it, but three is the maximum they place in
one family,” she said. “I just like having a lot of people around me.”
For Mr. Hayen,
this is his third foster home in nearly 30 years, and he says he gets along
well with the other boarders, Etty — “a good woman” —
and Iosif — “a gentleman.”
“I have a mighty life here,”
Mr. Hayen said enthusiastically. “Because I look to
freedom, like every person pretty much.”
His next project, he said,
was to get a secondhand bicycle to ride to the
activities center next to the psychiatric hospital
for his weekday pastimes.
The New York Times is
identifying and photographing boarders and their foster families according to
their wishes, and a psychologist accompanied Times journalists during the
reporting.
Since the 1860s, Geel has had its own state psychiatric hospital, which is
the anchor and safety net for the program.
Wilfried Bogaerts, a leading
psychologist there, said that finding patients for the fostering program was
not so much about their diagnoses, but rather about how stable their conditions
were. Boarders include people who have schizophrenia or other severe psychoses
but who have settled into a treatment and can function well in a family.
Potential boarders are
matched with families that have been screened and have had their homes approved
to take in a boarder.
Diagnoses are never revealed
to foster families, unless the boarder chooses to share. Case workers instead
focus on preparing families for what kind of behavior
to expect, the medication regimen and red flags that should be swiftly
reported.
Key to the trust that
underpins the arrangement is the 24/7 availability of case workers at the
hospital nearby.
“Foster care is psychiatric
care, which means that all the team members that you can find in a regular
psychiatric hospital are involved in foster care,” Mr. Bogaerts said.
‘Guardian Angel’
The Belgian state pays
foster families a stipend of 23 to 28 euros per boarder per day ($25-$30). By
all accounts, the money is not enough.
And the program has been
steadily shrinking in recent years. The local community and the hospital are
trying to reverse that trend. Belgium recently submitted a bid for Geel’s fostering program to be recognized as “intangible
cultural heritage” by UNESCO, the United Nations Educational, Scientific and
Cultural Organization. And the program leaders have rolled out an advertising
campaign to get more families to consider fostering.
“I think it’s important
that, for example, my grandchildren learn to live with people with such
conditions,” said Greet Vandeperre, 66, who leads a
community group representing foster families, boarders, the hospital, the town
and the police.
For many, the boarders
become family. Ingrid Daems and Hugo Vanopstal’s young grandchildren know Janina Bak, their grandparents’ boarder of 18 years, only as
“Auntie Nina.” They’re not sure how exactly they’re related, but in weekly
visits throughout their lives, they have sat on her lap, eaten with her and
celebrated with her.
When Ms. Bak
became very ill with a liver problem, spending nine weeks in a coma and a total
of four months in the hospital, Ms. Daems was there
to see her through it and welcome her back home.
“She’s my guardian angel,”
she said.
Harlem’s ‘Vertical Geel’
Ms. Vandeperre’s
decades-long career in Geel’s police force offers
insights into the questions that often arise from the town’s experience: Is the
approach safe? And can the Geel paradigm exist only
in Geel?
In Geel,
officers regularly come across boarders behaving strangely in public or even
breaking the law, Ms. Vandeperre said. But because of
the town’s culture of fostering, they know how to de-escalate a situation, and
to call the psychiatric hospital immediately.
The approach stands out from
that in the United States and elsewhere, where calling law enforcement may be
the first move when someone is experiencing a mental crisis. In many situations
where the police are involved and training is insufficient, the results can be violent and even
deadly.
Ellen Baxter, for one,
thinks that core elements of Geel’s approach can be
replicated and has spent the last 35 years trying to recreate it in New York.
Ms. Baxter, founder and
director of Broadway Housing Communities, a New York housing charity, was fresh
out of college in 1975 with a psychology major when, eager to learn more about
the fostering program, she moved to Geel for a year.
She returned to New York City and started fund-raising to create buildings
where people with psychiatric disorders could live within communities.
The most recent development,
in the Sugar Hill neighborhood of Harlem, is the one
she thinks most resembles a kind of “vertical Geel.”
It is home to families and single adults, some of whom are living with mental
illness and many who are not. The complex contains a day-care center and a museum that attract nonresidents.
Everyone knows who everyone is.
“You need two elements: good
design, and time,” Ms. Baxter said in an interview.
“Life becomes more about the
pragmatism of every day: Setbacks happen, people die, babies are born,” she
said. “The proximity of experience in one community makes values emerge — that
you don’t throw away the old people or the mentally ill or disabled people.”
Good Days and Bad
Mr. Bogaerts, the
psychologist, recalls the police being called only twice to resolve major
problems involving boarders in Geel over the two
decades.
But incidents do occur.
“Some days are a bit easier
than others,” Ms. Peetermans said.
Liliane Peeters,
63, and her husband, Jozef Vleugels,
65, had been fostering a boarder for 11 years when they decided to take in a
second person.
As an empty nester who had
recently retired, Ms. Peeters felt her home had space
for one more. After a few minor adjustments, such as working out that the new
boarder struggled to make sandwiches, things seemed to settle.
“I wanted to take on that
care, I have that somewhere in me,” she said. “I actually wanted someone I
could make the sandwiches for.”
A problem was that the
bathroom was on a different floor from the boarder’s bedroom, down steep
stairs, and at night, Ms. Peeters asked the new
boarder not to use it to avoid falling.
One morning, she woke up to
find the boarder in crisis after having defecated on the bedroom floor. Ms. Peeters got gloves and a brush. A case worker helped. The
boarder moved back into the hospital.
“There are limits in the
care people can and will give,” said Mr. Bogaerts, the psychologist. “If things
like this happen, if someone has already been living in a foster family for 10,
15 years or more, then they will manage to find a solution.” He added, “But if
it happens in the beginning, it’s too much.”
Other episodes are less
confronting, but profoundly heartbreaking.
When Ms. Peetermans,
who today fosters Iosif, Etty
and Mr. Hayen, was a girl, she would often see a man
named Robert, a boarder staying with a family on her street, cutting roses.
Years later, when Robert’s
foster family aged, Ms. Peetermans decided to take
him in. Robert became like an older brother to her son.
He had been living with them
for seven years when, during the pandemic, his condition worsened. Last
September he moved into the psychiatric hospital, where she now visits him
regularly.
Ms. Peetermans
broke down recounting the story.
Asked what the hardest part
of fostering was, she didn’t hesitate.
“If they have to leave,
that’s the hardest thing,” she said.